is bryan warnecke still alive
A postscript notes that in 2014, "Bryan and his teammates have ridden over 1200 miles and raised $300,000 for Cystic Fibrosis research," and refers viewers to the website of the Cystic Fibrosis Foundation (CFF). Santorini, Greece At the end of it all, it isnt about how many good memories you have had that makes your life an impressive one. The mucus in everyone elses lungs is mostly water, so you can clear it easier, but when it comes to my lungs, the mucus is very syrupy. The video is dedicated to 15-year-old Bryan Warnecke, a fan of the band, who has cystic fibrosis. He would get bronchitis, which would turn into pneumonia. Want to know what everyone in the music business is talking about. OneRepublic frontman Ryan Tedder noted that he wrote the song for his four-year-old son. Aside from her profession, she is known to be fairly private about her life. Bryan Warnecke Molly Moore - Peace Of My Heart (Sweekuh Remix) Reposted 1 year ago 1 year ago. The song was also contributed for the soundtrack of the 2014 film The Giver, alongside the specially recorded track Ordinary Human. Bryan Warnecke is 15 years old and has cystic fibrosis (CF). Right now, it's about thirty-six. I've been doing my treatments everyday of my life, so to me, its just one of those things thats normal. This video podcast/vodcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation. You. In 2010, Stralman started to recycle infections. Bryans goal is to become the first goalie with cystic fibrosis to play in the Olympics for Team USA. It's clear when you meet Bryan Warnecke that he has the attitude that is necessary to thrive. I Lived features home videos of Warnecke, growing up and doing normal things and receiving breathing treatments for his disease. Find Instagram, Twitter, Facebook and TikTok profiles, images and more on IDCrawl - free people search website. I DID IT ALL= They are hoping that you are able to experience emotions and experiences whether they be heartbreaking or joyous. For Ryan Tedder and One Republic to do something like this, to take a chance and take a hit song and make it something really good there is no way we can repay them for the level of awareness theyre giving to the CF community, Steve Warnecke said. The more I work my lungs, the better I am. He will get a sense of normalcy.". Noel Zancanella OneRepublics recently-premiered music video for "I Lived" - the latest single from "Native" - tells the story of Bryan Warnecke, a boy living with cystic fibrosis. I've been doing my treatments every day of my life, so to me, it's just one of those things that's normal. The song appeared in a Chase Sapphire Preferred commercial. Tedder commented that he was with Timbaland from 20022004 to develop as an artist while producing for other artists at the time. Camilla Cassidy of The Edge also gave it four out of five stars, describing the song as an anthem for hope and enpowerment, with meaningful lyrics and a wistful tone that inspires listeners, however, she found its delivery to be somewhat absent, and "neither somber nor particularly energetic". View the profiles of people named Bryan Warnecke. Every day, Bryan undergoes two lung treatments. All Rights Reserved. Bryans dad, Steve, says last winter was especially tough. Sign up for our newsletter to get all of the latest news from The Foundation right in your inbox. September 23, 2015 - March 15, 2016. Bryan Warnecke, 16, may not live in Tampa, but his fandom will be as passionate as any Lightning fan you will find there. SWEEKEND. With a fat passion for adventure:) Amateur photographer, student & lover of life. Ryan Tedders band has been releasing versatile hits for nearly two decades, but they still remain under the radar. He missed four or five weeks of school and he was at Childrens Hospital for a week, Steve Warnecke said. The treatment is the same you'd receive if you have cystic fibrosis. Join Facebook to connect with Brian Warnecke and others you may know. The video features 15-year-old Bryan Warnecke of Colorado, who has cystic fibrosis. Bryan "Pink Lightning" Warnecke Raised $300,000 for CF research at 2014 Courage Classic - Join Team Pink Lightning now at www.pinklightning.com Castle Rock, Colorado, United States 75 followers. The clip ends with Tedder driving Warnecke to a concert at the scenicRed Rocks Amphitheatre in Colorado to see him and his band perform. It also means that if you are feeling any kind of hurt (emotional one in this case), you are still alive. YOU BUILT A WALL= This means that if something happens you have prepared for it and that you will be safe when it happens. Email or phone: . A remix was produced for the Coca-Cola [RED] campaign to fight AIDS. And to help in the effort, he has enlisted controversial Washington lobbyist and activist Jack Burkman, who was linked to a scheme to falsely accuse a presidential candidate of sexual assault. As with other songs on the Native album, Tedder drew songwriting inspiration from U2, where he focused on writing songs from the heart and from personal experience. Oh Oh Oh Oh Steve Warnecke "It is a dream come true," added Bryan Warnecke. It was an incredible experience.It is a dream come true, added Bryan Warnecke. "Cystic fibrosis is a tough disease. Warnecke is a 15-year-old student at Rock Canyon High School who suffers from cystic fibrosis (CF) and yet continues to set examples of amazing courage and physical endurance. Their next tour date is at PNC Music Pavilion in Charlotte, after that theyll be at Coastal Credit Union Music Park at Walnut Creek in Raleigh. Regarding the lyric With every broken bone, I swear I lived, Tedder said, So for every day that youre on this earth, for every minute that you have, the whole idea is doing nothing less than exactly what you feel youre supposed to do and squeezing every last drop out of life every day, regardless of the difficulties or trials that you face.. Bryan Warnecke, who is a major fan of Ryan Tedder and Co.s music, will get the ultimate prize by being flown from his small town to witness live one of the most important concerts in OneRepublic's latest North American tour. I am alive today because of Childrens Hospital and Dr. Accurso, who is the top researcher in the world for CF. Song of the Day - I Lived - One Republic. They also performed it on The X Factor on October 26. Because in the end, it doesnt matter which ones were difficult and which ones were enjoyable, all that matters in the end is the fact that, because you were able to push through those challenges and emotions, you have more life experiences. Bryan Warnecke. "I Lived" was featured in an NBC commercial for The Office and Parks and Recreation. The CF Foundation and OneRepublic are helping to keep that dream alive., We are thrilled that OneRepublic has chosen to feature Bryan and support the 30,000 Americans living with cystic fibrosis through this inspiring song, said C. Richard Mattingly, executive vice president and chief operating officer of the CF Foundation. "He was very encouraging about Bryan sticking with his dream of being the first person with (cystic fibrosis) to compete in the Olympics," Warnecke said. If you continue to use this site we will assume that you are happy with it. All of those moments have added up to define just one thing. OneRepublic's new video for Native's sixth single "I Lived" is a touching tribute to one teenage fan, Bryan Warnecke, and his struggles success living with cystic fibrosis. Bryan Warnecke When faced with a new diagnosis, its natural to have lots of questions. Marcus Floyd of Renowned for Sound gave the single four out of five stars, citing its finger-picking introduction as setting an easy and soothing atmosphere, and calling the overall song a catch and enlightening addition to their singles. Provided tutoring to students in . Emily Tan of Idolator grouped the song with "Counting Stars" and "Something I Need" as songs that "will keep core fans and AC radio listeners happy". Bryan said no one is ever tried to talk him out of playing hockey. It was originally planned to be released as the fifth single in January 2014, but was shelved in favor of "Love Runs Out". He's already signed on to play with the Okanagan hockey program in Canada. The video is dedicated to a 15-year-old fan of the band, Bryan Warnecke, who suffers from cystic fibrosis. The disease is merciless, and the life. See Photos. On September 23, the remix EP was released, which included the Arty remix as well as a "gossamery electro-pop" remix from Carousel and a remix by the band Heroic. Remixes have been developed for the single. Bryan, however, hasnt let the disease slow him down. A New York pulmonologist, Emily Dimango, finally diagnosed him with bronchiectasis. Bryan Warnecke, who has cystic fibrosis, is featured in a new music video from the American pop band OneRepublic. I Lived" is a song recorded by American band OneRepublic. TAMPA When NBC figures its overnight ratings in the Tampa market for Monday night's Game 6, it should add one household for the teenager who will be cheering for the Lightning from his bed at Children's Hospital Colorado in Aurora. Jan 31 "She has daddy issues" could be said as: she's experienced emotional or physical abandonment from her father and because of this she has trouble trusting. "The scar tissue had built up in his lungs from the asthma and prevented him from clearing mucus, which caused further infections, similar to what Bryan is going through right now.". Lifeguard at Apollo Aquatics, Inc. May 3, 2016 - Present. DISEASE= /d'zi:z/ Sickness, illeness; an abnormal condition of a part, organ, or system of an organism resulting from various causes, such as infection, inflammation, environmental factors, or genetic defect, and characterized by an identifiable group of signs, symptoms, or both. Billboard is a part of Penske Media Corporation. How do I get Amazon Prime on my older Samsung TV? The disease is merciless, and the life expectancy for someone suffering from it hovers around the unforgiving age of 36. They said, you know, weve been looking around the country over the past four or five months trying to find the right story to pair up with this song, I Lived. We really want to do a music video about your sons life, Steve Warnecke said. "It can be tough," he said. It is directed by Noble Jones. I want to make the most out of my life and have as much fun as I possibly can and my biggest fear is not being able to do that. Is Bryan Warnecke cystic fibrosis still alive? Cystic fibrosis is a disease that attacks the digestive system and slowly shuts down the lungs. THEY ALL ADD UP= Allow yourself to collect experiences. . When I first found out the life expectancy for the first time, it really scared me. My name is Bryan Warnecke and I've been living with cystic fibrosis for fifteen years Hope when you take that jump You don't feel the fall Hope when the water rises You built a wall Hope when the crowd screams out They're screaming your name Hope if everybody runs You choose to stay When I first found out the life expectancy for the first time, it really scared me. The CF Foundation and OneRepublic are helping to keep that dream alive., We are thrilled that OneRepublic has chosen to feature Bryan and support the 30,000 Americans living with cystic fibrosis through this inspiring song, said C. Richard Mattingly, executive vice president and chief operating officer of the CF Foundation. In the state tournament, he gave up no goals and stopped 27 shots in his first two games, and then came on in relief, giving up one goal in 17 shots, to help win the state title game 5-4.. "Through the season, Bryan was getting sicker and sicker, but he wasn't letting me know," his dad said. Do you need an HDMI cable for a Blu-ray player? I did it all I owned every second that this world could give I saw so many places, the things that I didWith every broken bone I swear I lived Oh whoa oh oh oh oh oh (x2) I swear I lived Oh whoa oh oh oh oh oh (x2). Why Pink Lightning? Join OneRepublic and help add tomorrows to the lives of people with cystic fibrosis. Thanks to advances in DNA testing, doctors are identifying more and more people with CF for the first time well into their 50s, 60s, and 70s. The Panhandlers are BACK.. file uploaded and commented by Marimistasin. It was so much fun spending so much time with these guys from OneRepublic. OneRepublic & Bryan Warnecke Give "I Lived" A New, Empowering Message. The Giver: Music CollectionThe Giver / Soundtrack. https://multimedia-english.com/videos/esl/i-lived-onerepublic-6082. They probably won't make the same cash the ELA campaign is doing, but still very nice of 'em! Ohhh TAKE THE PAIN= Don't let the pain stop you or make you suffer; take it, use it to push you farther. It features Bryan Warnecke, a 15-year-old Cystic Fibrosis patient . Death is most often caused by lung complications. It is directed by Noble Jones. Its just one of those things that really makes you appreciate life. Your California Privacy Rights/Privacy Policy. How do I put downloaded movies on my Firestick? I Lived/Composers. Last year, Dr. Accurso received FDA approval for Kalydeco, a drug that dramatically extends the life for 5% of all CF patients (unfortunately, not me). When did I lived by Ryan Tedder come out? I am alive today because of Children's Hospital and Dr. Accurso, who is the top researcher in the world for CF. One lasts 40 minutes. Stralman gave Warnecke his game-used stick, and it is now on Warnecke's wall in Colorado. Their new hit song, I Lived, focuses on living life to the fullest. See Photos. I owned every second that this world could give "He's gregarious and he has a great presence," Ward said. They rode 1,065 miles through 46 Colorado cities and over 8 mountain passes in 43 days, raising a record $300,000 for Childrens Hospital of Colorado.It is this spirit that caught the attention of OneRepublic. I, I did it all Ryan Tedder has been married to Genevieve Tedder since 2004. "He's passionate about the game.". See Photos. We use cookies to ensure that we give you the best experience on our website. RAISE YOUR CUP= Celebrate all the things you have accomplished. He also explains the fear of living with the disease. Looking for Brian Warnecke online? With every broken bone, I swear I lived. See Photos. Genevieve is a well-known photographer. best foods to regain strength after covid; retrograde jupiter in 3rd house; jerry brown linda ronstadt; storm huntley partner 421,922 plays 421K; View all comments 66; Play. "We won't give him special attention on the ice because of his disease," Ward said. Follow every game: Latest NHL Scores and Schedules, "Stalman's asthma has led to lung infections much like what can happen with (cystic fibrosis) kids," Warnecke said. Its just one of those things that really makes you appreciate life. Despite having to complete multiple breathing treatments every day just to stay healthy, Bryan is a long-distance cyclist, skateboarder and one of the best high school hockey goalies in Colorado. If you continue to use this site we will assume that you are happy with it. . Bryan's been living with cystic fibrosis, a disease that ravages his lungs and makes it feel like he's "breathing through a straw," for fifteen years. Lone Tree, Colorado. The particular situation worked out, but make sure to check your local laws before you . Instead of giving up on your dreams, like many people do, don't run away and fight for them. Bryan Warnecke (@warriorsstar33) Instagram photos and videos warriorsstar33 Follow 262 posts 2,252 followers 2,294 following Bryan Warnecke Free ride skier and mountain biker. "It's a battle. Why did Ryan Tedder write the song I Lived? He takes antibiotics regularly. OneRepublic's new video for Native's sixth single "I Lived" is a touching tribute to one teenage fan, Bryan Warnecke, and his struggles success living with cystic fibrosis. Warnecke is a fellow Colorado native who is a bicycling enthusiast. Journal of CF Highlights Cost Burden Prevalent in the Cystic Fibrosis Community, CF Foundation Formalizes Recommendations to Address Health Inequities, CF Foundation Reflects on Progress Toward Equity, Racial Justice, Diversity, and Inclusion, OneRepublic Features Teen with Cystic Fibrosis in New Music Video, Country Music Duo Branch & Dean Become CF Foundation Ambassadors, Annual Leadership Conference Brings Together Dedicated CF Foundation Volunteers, Corporate Partners and Staff. Drawing from the words in the song, Bryan says, I believe in living every second to its fullest, taking the jump without fear of the fall and taking the pain while giving it my all. He adds, My dream is to become the first person with CF to compete in the Olympics as the goalie for the USA hockey team. I Lived/Composers. "With every broken bone / I swear I lived." Its lead single, Apologize, was remixed by Timbaland, becoming a huge international success, reaching number one in sixteen countries and subsequently earning them a Grammy Award nomination. The idea was from Sophie Muller. Ward's program centers on giving his players a life experience as well as a hockey experience. I owned every second that this world could give Beloved son of the late William B. and. What instruments are in the song I lived? Ohhh, Credits adapted from the liner notes of Native. Is Bryan Warnecke cystic fibrosis still alive? Until the video, most students at Rock Canyon High School probably had no idea that Warnecke was battling a serious disease, forced to endure treatments every day for the past 15 years, to ease the impact of the disease. Warnecke was diagnosed with CF at birth and has spent countless weeks throughout his life at Children's Hospital. WITH EVERY BROKEN BONE I SWEAR I LIVED= Just because you have been down a few rough roads, it doesnt mean that you still cant experience this huge world as much as you are able to. Bryan Warneke passed away on January 11, 2015 in St. Louis, Missouri. Can you get a lung transplant if you have pulmonary fibrosis? Despite his rigorous treatment regimen, which includes 40-50 pills and twice per day breathing treatments, Bryan is a double black diamond skier, avid skateboarder, long distance cyclist and one of the best hockey goalies in the state. "And that's what he wants. . Cystic fibrosis is a disease that attacks the digestive system and slowly shuts down the lungs. YOU DON'T FEEL THE FALL= Its important to not be afraid of failure and to push yourself to try things and jump, taking risks or following your dreams. I want to make the most out of my life and have as much fun as I possibly can and my biggest fear is not being able to do that." I saw so many places, the things that I did Today, the average life span for people with CF who live to adulthood is about 44 years. After a brief introduction of his disease, Bryan shows OneRepublics fans in the video photographs and footage of how hes grown up dealing with this unfair burden. It is characterized by the production of abnormally viscous mucus by the affected glands, usually resulting in chronic respiratory infections and impaired pancreatic function. When Bryan Warnecke met Bettman and Stralman, he already knew he had to enter the hospital for a lengthy stay to receive treatment and clear his lungs. I, I did it all Funeral Home Services for Bryan are being provided by Schrader Funeral Home and Crematory - Ballwin. "I Lived" features home videos of Warnecke, growing up and doing normal things - and receiving breathing treatments for his disease. Despite his rigorous treatment regimen, which includes 40-50 pills and twice per day breathing treatments, Bryan is a double black diamond skier, avid skateboarder, long distance cyclist and one of the best hockey goalies in the state. "To be honest, I'm probably the worst goalie at the school right now," he said, laughing. "They know it won't work," he said. The good and the bad, the attractive and the ugly, the heartbreaks and the celebrations. The music video was released on Vevo and YouTube on September 25, 2014. Matt Collar of AllMusic grouped the song among the album's "clearing house for mainstream pop sensibilities". The true story of Jackie Kennedy Onassis's relationship with diamond dealer Maurice Tempelsman, the man who was her partner at the end of her life. I, I did it all It's terrifying and heartbreaking, but it's not getting in Bryan's way as he continues to do the things he loves, like cycling (while raising funds and awareness for cystic fibrosis research) and other athletics. Warnecke's inner drive has always been off the charts. In an interview with People magazine, he said, "The whole idea, to quote the late great Robin Williams from Dead Poets Society, is very much 'carpe diem'." ReutersA search warrant unsealed Thursday revealed another list of creepy items cops seized when they arrested alleged Idaho quadruple killer Bryan Kohberger in Decemberthis time from his family home in Albrightsville, Pennsylvania.The warrant revealed cops seized a Glock 22 pistol and three empty magazines for the gun, as well a Smith & Wesson pocket knife, a black mask, black gloves and a . Producing and writing. I've been doing my treatments everyday of my life, so to me, it's just one of those things that's normal. This disease is defined "Cystic Fibrosis is the most common life threatening autosomal recessive disorder caused by mutations in the cystic transmembrane regulator gene"(Tabori H et al).Or as the boy states in the . Colin Stutz of Billboard called the music video a touching tribute to Warnecke. Bryan Warneke. On July 25, the group played "I Lived" on The Today Show as the viewers' most requested song. Despite his rigorous treatment regimen, which includes 40-50 pills and twice per day breathing treatments, Bryan is a double black diamond skier, avid skateboarder, long distance cyclist and one of the best hockey goalies in the state. The oldest person diagnosed with CF for the first time in the U.S. was 82, in Ireland was 76, and in the United Kingdom was 79. "It's a great for me to stay active. Bryan has cystic fibrosis. On September 22, 2014, OneRepblicVEVO posted an audio video of the track, followed up three days later by the music video. In a track by track video, published to the OneRepublicVEVO YouTube channel on March 25, 2013, Tedder reveals that it was the last song idea they came up with for the album. I swear I lived. The car is also featured in the music video. He is far from done with hockey. TREATMENTS= /'tri:tmnt/ (Medicine) The application of medicines, surgery, psychotherapy, etc, to a patient or to a disease or symptom. Whats the oldest someone has lived with cystic fibrosis? In fact, he is an active teenager, playing hockey and cycling; last summer he decided to conquer the grueling Courage Classic. . Steve Warnecke said Ward told him that he already showed video of Bryan to his team to show them how hard he works to play. After releasing the Native re-pack exclusive new song Love Runs Out a few months ago as the latest OneRepublic single, the Ryan Tedder-led band is now at it again with the original edition of "Native" giving "I Lived" the shot to shine on its own. He said that "it's absolutely universal and applicable to everybody." OneRepublics new video for Natives sixth single I Lived is a touching tribute to one teenage fan, Bryan Warnecke, and his struggles success living with cystic fibrosis. Is there confession in the Armenian Church? One year after winning the MTV competition, Tedder caught the attention of the hip hop producer Timbaland. Drawing from the words in the song, Bryan says, I believe in living every second to its fullest, taking the jump without fear of the fall and taking the pain while giving it my all. He adds, My dream is to become the first person with CF to compete in the Olympics as the goalie for the USA hockey team. Within a week, they were out here doing a concert and we were shooting video and three weeks later they had the video all put together and up on YouTube. I want to make the most out of my life and have as much fun as I possibly can and my biggest fear is not being able to do that. With every broken bone, I swear I lived. It could mean that if bad events happen (when the water rises), you should not give up and keep going; the wall could represent you, trying to keep the bad from getting to you or affecting you. SHUT DOWN= Cease to operate, or cause to cease operating. And hes living with cystic fibrosis. We each have our faith and fundamental beliefs, but we arent a Christian band, he clarified. Despite his rigorous treatment regimen, which includes 40-50 pills and twice per day breathing treatments, Bryan is a double black diamond skier, avid skateboarder, long distance cyclist and one of the best hockey goalies in the state. It was done by Dave Aude and released on November 3, with an iTunes release on November 24. "It feels like I'm breathing through a straw," says Warnecke. How do I change the format of a video in Adobe? Facebook gives people the power. I'm proud of him for the way he battles through. On September 18, Arty released a remix for the song, which he describes on his website as "taken elements from the original and worked them into a melody-drenched progressive house ballad, successfully repositioning the track for the dance floor." I've had days when I've said, 'I'm not going to do this anymore.' The American pop band OneRepublic, known for chart-topping hits such as Apologize and Counting Stars joined the search for a cure today with the release of the music video for their hit song, I Lived. The video features 15-year-old Bryan Warnecke of Colorado, who has cystic fibrosis. My name is Bryan Warnecke and I've been living with cystic fibrosis for fifteen years. Right now, it's about thirty-six. Chris Gheringer & Will Quinnell at Sterling Sound, Blastronaut Music (BMI) / Patriot Games Publishing. Whenever I try to breathe hard, it hurts. In it, Ryan is encouraging him, based his own disposition concerning life, to own every second he is gifted with. See Photos. It makes me appreciate where you are, as a person. Amy Sciarretto of PopCrush described the track as having "a funky, lived-in energy, and is looser than many of its counterparts. Fox Show and Red Band Society in addition to as well as on various ESPN programs such as SportsCenter and First Take. . WHEN THE WATER RISES= When the water increases its high-level or moves upwards. This remarkable young man constantly powers through a rigorous treatment regimen. Instructed in-seat courses in the areas of Electronics, Mathematics, and Computer Hardware. How does the braking system work in a car? MUCUS= /'mju:ks/ The viscous, slippery substance that consists chiefly of mucin, water, cells, and inorganic salts and is secreted as a protective lubricant coating by cells and glands of the mucous membranes. He water skis and bikes and runs. Cystic fibrosis is a disease that attacks the digestive system and slowly shuts down the lungs. In 2007, OneRepublic released their debut album, Dreaming Out Loud. The video features 15-year-old Bryan Warnecke of Colorado, who has cystic fibrosis. target no need to return item. Why did Ryan Tedder write the song I Lived? Bryan Warneke. STRAW= A slender tube used for sucking up a liquid. The American pop band OneRepublic, known for chart-topping hits such as Apologize and Counting Stars joined the search for a cure today with the release of the music video for their hit song, I Lived.. The funds and awareness it raises will help us achieve our mission to find a cure for all people with the disease.. Bryan Warnecke, By Colin Stutz. I, I did it all HOPE IF EVERYBODY RUNS YOU CHOOSE TO STAY= Don't be a coward and don't be afraid of being the one to stand out if what you are standing out for/against is something you truly believe in. Bryan Warnecke will be cycling in the mountains in July without part of his right lung. The music video for "I Lived," however, makes the previously unknown quite difficult to overlook. In this CF Podcast, we meet Bryan Warnecke - the young man with cystic fibrosis who was featured in the One Republic I Lived music video. Haley Black of Highlight Magazine while not reviewing the song specifically in her Native review, listed "I Lived" along with "Au Revoir" as recommended track on the album. Orlando, Florida Area. Bryan's daily care includes 50 pills and two half-hour respiratory physical therapy treatmentsas well as ongoing visits to Children's Colorado. 2023 Billboard Media, LLC. Active in various athletics, he is extremely passionate about ice hockey a sport in which his team has won a state championship. Bryan's been living with cystic fibrosis, a disease that ravages his lungs and makes it feel like he's "breathing through a straw," for fifteen years. They announced it in an Instagram post, saying: 14960 Manchester Road Ballwin, MO BRYAN WARNEKE OBITUARY Warneke, Bryan L. baptized into the hope of Christ's resurrection, Sunday, January 11, 2015. Download/Spotify. I OWNED EVERY SECOND= (to own = to posess) I made every second worthwhile, living it like if i were dying. None of us have brothers in real life so weve all become each others brothers more or less, and so for me its been awesome. It just fits the whole concept of the song in a way I didn't expect. The obituary was. Also called mucoviscidosis. Honestly, these guys were larger than life." The Warnecke family says they are thankful for the band, as well as the 40 members of the video crew who have helped to bring attention to this important issue. What is the life expectancy for cystic fibrosis? Bryan Warnecke talks about living with cystic fibrosis in the music video: Cystic fibrosis is a disease that attacks the digestive system and slowly shuts down the lungs. See . The mucus in everyone else's lungs is mostly water, so you can clear it easier, but when it comes to my lungs, the mucus is very syrupy.I've been doing my treatments everyday of my life, so to me, it's just one of those things that's normal.